Magdalena | Austin | Galen | Morleys | Michael | Susan | J'aime | Kristen | Jen | Ryan | Alma | Luis | Aria | Timena | Lexi | Faelan | Taylor | Melissa | Kristin | Sabuco Twins
Savanah | David | Meghan | Damian | Ashley | Lexie | Ron
Magdalena Cabrera knows what it’s like to be on both sides of the equation. She began donating blood with Stanford Blood Center in 1980. She did so knowing the importance of donating blood products when suddenly the tables turned in early 2013 when she was diagnosed with a very rare form of cancer called Mucosal Melanoma. One in 25 million people have it.
In February 2013, she noticed she was feeling very congested and had trouble sleeping because of it. She tried various over the counter medications and nothing seemed to ease the symptoms. When she pressed against her right nostril it felt spongy. She consulted with an ENT doctor who recommended a CT scan the very next day.
The doctor would call to say he found a large mass and would need to do a biopsy immediately. The diagnosis was mucosal melanoma. Melanoma, both cutaneous and mucosal, is known to be radiation resistant and chemotherapy resistant. She had her first surgery at Stanford.
She had her second surgery in late May 2013. She would need further treatment that included 30 sessions of radiation to her head and neck along with concurrent low-dose chemotherapy, and then three rounds of bio-chemotherapy. This is when her blood counts plummeted and she needed blood products similar to the ones she had so thoughtfully donated for so many years to counter the toxicity of the chemo drugs.
A third surgery took tissue from three areas and quickly revealed still more mucosal melanoma cells present in the sinus cavity. The latest treatment strategy included four rounds of an immunotherapy drug called Ipilimumab, one every three weeks. She is happy to report that as of May 2016, there is no evidence of disease.
Magdalena wants blood donors to see her as someone who has come full circle. From faithful donor of 30-plus years, to grateful patient who’s had a life-threatening illness and who was made so much better by receiving donated blood products at a really critical time. She encourages everyone to recruit family, friends and neighbors to donate blood as well.
We are happy to report that after consulting with our Director of Medical Services, Magdalena has been cleared to donate blood again! Her first appointment back in the donor chair was this past October 2016 and she looks forward to picking up where she left off---full circle, indeed.
In 2015, Betsy, and her husband Steve, received news that no parents should have to hear. Their little boy, Austin, just three years old at the time, had been in and out of the doctor’s office for a few weeks. Everyone suspected antibiotic-resistant ear and sinus infections and inflamed adenoids. On August 26, though, they noticed that their happy, chatty boy’s smile looked lopsided. He wound up in the ER getting a CT scan, and the results were devastating: Austin had a tumor pressing up against his brain. Two days later, doctors at Lucile Packard Children’s Hospital diagnosed him with Stage IV Burkitt’s Lymphoma, an aggressive, but treatable, cancer.
By late January, Austin had gone through chemo, two ambulance rides, and 15 stays and 92 days at Lucile Packard Children’s Hospital. He received 15 blood transfusions, nine platelet transfusions, and IVIG (immunoglobulin) at least once, courtesy of SBC blood donors. That stirred a profound sense of gratitude in Betsy. “I can’t quite describe what it was like to be on the receiving end of one of those bags of blood,” she wrote, following Austin’s first transfusion in a blog she created to keep family and friends updated. “I've donated plenty of times before (though not as frequently as I should), and occasionally wondered where it ended up. Seeing that bag hanging on Austin's IV pole.... I wanted to know who donated the contents of that bag, find them, and thank them.”
Happily, this past January, after a very tough five months, Austin reached a very exciting milestone: he is cancer-free.
Galen “G” Dahl’s mom, Jade, will never forget the day eleven-years ago when they took the then two-year old toddler to urgent care with what the family thought were symptoms of a virus. Galen had been feeling under the weather, but Jade had an eerie feeling something wasn’t right. Doctors found he had cardiomyopathy, or an enlarged heart, and would need a transplant to save his life.
This type of transplant on someone so young is very rare. Doctors tried to manage the family’s expectations by letting them know a donor might be very difficult to find. Despite the odds being stacked against baby G, the family did not lose sight of hope and five weeks later, on Mother’s Day 2005, a donor was found.
“That was about the best Mother’s Day present I’ve ever received,” said Jade. G received several units of blood, as is typical of a heart transplant.
G, now 13, continues to go for quarterly check-ups of echocardiograms and blood draws. He has a full biopsy once a year, and will for the rest of his life. Other than that, he lives a normal life.
G is the most thankful for how supportive his family is. He wants everyone to please consider becoming blood and organ donors so that other people, and kids like him, can lead long and healthy lives, too.
Kendralyn and Cole Morley knew from an early age that they wanted to spend their lives together. Now 24 years old, Kendralyn and Cole have been friends since they were seven, playing on the same coed hockey team for several years. Theirs is a great love story, sprinkled with difficult challenges and pain, but with a happy ending.
When Cole was ten, he started experiencing constant pain in his leg. After many tests, his doctor determined that he had Ewing Sarcoma, a rare bone cancer that created an eight-pound tumor on his pelvis. The doctor recommended an aggressive treatment plan that included chemotherapy, radiation, and a surgery that would likely result in Cole not being able to walk again. Cole started treatment at Stanford Health Care (SHC) — 14 rounds of chemotherapy and 30 days of radiation — during which he received significant amounts of blood products to keep him alive. The final step was surgery to remove the tumor, and with it half of his pelvis. After an initial recovery period, Cole went to physical therapy one to two times a week for at least two years. His hard work and dedication paid off. Not only was Cole able to walk again, he was able to continue playing hockey. “I took one day at a time. A positive attitude is the reason I am doing so well now,” Cole said.
Kendralyn and Cole continued to be friends over the next few years. Cole was recovering well and back on the hockey team. Then one fateful afternoon Kendralyn, 13 at the time, was out riding her dirt bike and was in a terrible accident. She was riding down a bumpy hill when her front tire hit a rut throwing her over the handlebars; her feet caught on the handlebars and whipped her towards the ground. When emergency staff arrived, they anticipated a lot of internal bleeding and made the decision to send Kendralyn to SHC to receive the best care possible. She lost so much blood that day — over ten units — that she almost died. Fortunately, the blood products she needed were available, thanks to the generosity of donors. Surgeons replaced the shattered bones in Kendralyn’s face with metal plates and she spent the next three months in the hospital with her mouth wired shut. Once the wires were cut, she had to learn how to reuse the muscles in her jaw so she could eat and talk again. She has since had two more surgeries and may require more.
Kendralyn and Cole, now married, both recognize how lucky they are. “We talk about how we are inspired to live life to the fullest. We both came so close to not being alive anymore,” Kendralyn said. “We want to give blood to give back, we can save peoples lives,” said Cole. Kendralyn admits, “I don’t like needles but there is something about giving blood – it doesn’t hurt – and I know it’s going to help someone. We donate with Stanford because of our personal connection and because it fulfills an immediate need in our community.”
Michael was just 20 years old when he was diagnosed with acute myeloid leukemia (AML) in 2013. What started out as what doctors thought was a bad cold, turned out to be a life-threatening and rare type of cancer that could become fatal withhin a few months if not treated. Michael and his family were in disbelief. A healthy young man up until that point, Michael had trouble absorbing the news. “I was really upset. I kept asking ‘Why is this happening to me?’ I gave up on faith,” Michael said.
Michael started receiving treatments right away, which included rounds of radiation and chemotherapy, along with blood transfusions at least once a week to keep his red blood cell count up. The next step was to wait for an HLA antigen match to be identified who could successfully donate bone marrow for a transplant.
Luckily, a few momths later, a 97% match was found and Michael underwent a successful bone marrow transplant procedure. It took some time for Michael's new bone marrow to start making white blood cells on its own, but eventually it did and Michael started to heal. Today Michael is in remission and tries to live every day to the fullest.
“We are extremely thankful that the Stanford Blood Center was there to save my son’s life,” said Glafira. Michael added, “If you donate blood, you could save a life. It could be a husband, a child, a brother, a mother — someone else’s or your own.”
Susan remembers the start of her journey like it was yesterday. At the age of 22, she noticed something strange; an inflamed lymph node in her groin area. She thought she was in great health so she ignored the symptom and avoided the doctor for the next year. However, the problem persisted and was soon accompanied by a fever and constant tiredness. She finally decided to see a medical specialist.
Over the next several years, Susan saw doctor after doctor and was misdiagnosed multiple times. Then, seven years after her symptoms started and after losing 50 pounds in a month-and-a-half period, she finally saw a doctor who could see what Susan knew all along: something was very, very wrong. Susan was immediately referred to San Francisco General Hospital, where she saw an oncologist. A biopsy revealed the devastating news - Susan had non-Hodgkin's lymphoma. She was quickly referred to Stanford Hospital which, at that time, was looking for participants in their Bone Marrow Transplant program.
Susan spent the next eight months receiving chemotherapy treatments along with blood transfusions. When she was well enough, Susan was able to undergo a bone marrow transplant. After many more months in the hospital and time recovering at a Hometel, apartment accomodations on Stanford campus available to patients, she was able to go home and carry on with precious life.
Susan’s journey has been a long and painful one but she never gave up. She remembers telling her father “you taught me not to do anything I don’t want to do, and I don’t want to die.” And so, she kept fighting. She recognizes that without the generosity of blood and marrow donors, she may not have had another chance at life.
In November 2011, J’aime had just finished a master’s degree in Peace Studies and was living across the world in Pristina, Kosovo when she got an unexpected email from her doctor back in California.
A few weeks earlier, before she flew to Kosovo, she had asked her doctor about some unusual bruises she had noticed. Her doctor ordered some tests just to be safe, but she never dreamed it was anything too serious. But the tests showed a very low platelet count, along with low white and red blood cell counts. Warning J’aime that this could signal a potentially life-threatening bone marrow disorder, her doctor advised her to see a blood specialist right away. She traveled to Skopje Macedonia for care, on the advice of a United Nations doctor friend. The doctor she encountered was extremely helpful and caring; he suspected aplastic anemia, and explained that if confirmed, J’aime would need a bone marrow transplant immediately.
She returned to the U.S., and it seemed as though her symptoms intensified overnight. Her doctors in the US diagnosed her with severe aplastic anemia; essentially, her bone marrow was failing to produce enough new blood cells, leading her to be susceptible to infections and bleeding. Over the next few months, she received platelet transfusions twice a week, along with other blood products that kept her going while she awaited the treatment she needed to recover: a bone marrow transplant. She was referred to the incredible transplant team at Stanford, led by Dr. Miklos and Dr. Logan, who wasted no time in searching for a donor.
The family learn the her sister Shannon was a match for J’aime, and thankfully, although it was a long road to recovery for J’aime, the transplant proved successful. Shannon has inspired other VIP blood donors too, including J’aime and Shannon’s oldest sister Carey and their brother, Chancey. When a Stanford Blood Center blood mobile showed up at Chancey’s workplace, Xilinx, he knew it was the perfect time for him to sign up and become a donor. Now, he joins his sisters in spreading the word about the importance of blood donors. J’aime says it best herself: “As much as the transplant saved my life, I would never have been able to have a transplant if not for those 49 individuals who donated blood,” she writes. Today, J’aime is healthy, happy, and determined to live life to the fullest.
Kristen Terlizzi was a young, healthy mother of one who was thrilled to be pregnant with her second child. The pregnancy was going seemingly well and Kristen felt great but at 29 weeks an ultrasound revealed evidence of placenta accreta.
Placenta accreta is a condition during pregnancy in which the placenta attaches too deeply to the uterine wall in varying degrees. Kristen suffered from the most severe form, called precreta, wherein the placenta grows through the uterine wall and invades surrounding organs.
Despite the extensive preparations made by Kristen and her medical team, doctors were surprised during the delivery how extensive the invasion of the placenta was. In an unprecedented move, they decided to deliver the baby but leave the placenta inside her body while they evaluated the situation. Ultimately, doctors delivered the placenta and uterus during an emergency surgery lasting 8 hours and requiring Kristen receive 26 units of blood.
Kristen thinks about the donors whose blood was available to save her life that day and is forever grateful. "I consider those donors just as important to my outcome as the many doctors and nurses in the operating room that day. Without that blood, my story would have a much different ending.” Kristen said.
Jen Julian, 57, might be the most active person you will ever meet. She golfs, skis, bikes, boats, scuba dives, hikes and regularly makes good use of her newly granted pilot’s license. She is without a doubt the epitome of what life can be when given a second chance.
In 2006, Jen became the recipient of a double lung transplant. Even after what was considered a successful surgery, Jen was told it wasn’t likely she would ever be able to do the things she loved anymore. Months would pass before she regained her strength but through her incredible spirit and resolve, she persevered. Only six months after her transplant, and with permission from her doctors, she was skiing at 7,800 feet.
This July 2015, Jen will be celebrating the nine-year anniversary of her lifesaving procedure performed at Stanford University Medical Center. Since then, she has dived in some of the most famous bodies of water in the world. She has also started golfing again and even brought home a gold medal from the Transplant Games competition.How many people will ever get the proverbial second chance at life? If your name is Jen Julian, you recognize how rarely those chances are given and remind yourself by making the most of every single day. For that reason, Jen says she prefers to describe herself as a “thriver” as opposed to a “survivor.”
"Every day I wake up I’m reminded life is amazing,” said Jen. “The first deep breath I take is for my donor, and the next one reminds me to live the day to the fullest.”
On one fateful day in 2004, motorcycle enthusiast and Stanford Video employee, Ryan Roberts decided to ride his motorcyle to work when he was called in over the Fourth of July weekend. This decision would change Ryan's life forever.
Riding on the freeway to work, Ryan thinks he must've hit something in the road which threw him off course and into the guardrail. He remembers thinking "That guardrail is getting close, I am not going to be able to get out of this," before his bike started to wobble and he was down. He tried to stand but his leg was up by his shoulder.
Ryan suffered severe injuries, including an amputated leg, and lost apporiximately 80% of his blood that day. Thankfully, several people stopped to help, one happened to be an off-duty fireman and another a nurse on her way to work at Stanford Hospital. Thanks to the courage of these bystanders, and the blood donors that contributed to SBC having blood on the shelves when Ryan needed it, he survived.
“I'm forever thankful for the people who donated blood. I wouldn't be here today without them.” said Ryan.
Ryan spent several weeks recovering and still has two steel plates in his arm and a prosthetic leg but has worked hard to overcome the challenges of his new reality. He is still with Stanford Video and is now married with two beautiful children. Ryan hopes that his story will help inspire others to donate blood.
On June 10, 2014, after a long and complicated labor, baby Alma's journey began. At her two month pediatric appointment, she was diagnosed with Biliary Atresia, a chronic liver disease that is life threatening.
Doctors knew that had to work quickly to give Alma the best chance of survival so they conducted a Kasai portoenterostomy immediately but when that procedure was not successful, they rushed Alma to Lucille Packard Children's Hospital Stanford (LPCH) where she was stabilized and put on the pediatric liver transplant list.
Several months later, a liver was finally found for Alma and the transplant procedure took place. During the surgery, Alma received a full blood transfusion because she had an ABO mismatch liver. But the procedure was successful and the family is now back home in Portland, Oregon and Alma is happy and healthy.
"Every day is Christmas Day when I see her smiling and growing stong," said Alma's mom Amy.
Almost 20 years ago, Luis was water skiing with friends when the boat that was towing him unexpectedly reversed and the propeller caught Luis, damaging his right leg and abdomen. Since then the accident has led to other serious health complications such as liver damage.
Last year, Luis’ family noticed he was losing weight quickly and unable to absorb nutrients. Doctors decided to put him on a strict regimen of Total Parenteral Nutrition (TPN) or tube feedings. Unfortunately, liver damage is also a common side effect of TPN and in November 2014 he was admitted to Stanford University Medical Center, hoping to receive a liver transplant. Due to the severity of his illness, Luis moved up the transplant priority list quickly.
Over Christmastime Luis’ health rapidly declined until eventually he needed a transplant as soon as possible. Waiting for a proper organ match made days feel like years. Miraculously, on December 28 a match was found and three months after his surgery Luis was home and on the road to recovery. His body has adapted to the transplant very well and without any complications. Doctors have said Luis’ blood work looks great and he is currently in physical therapy working on regaining his strength.
Luis’ family wants everyone to know how important blood donation is so they decided to give back by doubling a surprise birthday party for him with a blood drive. “It’s hard to understand until you’re put in a position where someone you love needs blood,” said Luis’ daughter, Anais. “There were countless times we wished we could give him part of our health, a healthy liver, anything to make him better.“
“We will forever be thankful to those SBC donors who donated the blood that our father received, ” shared Gabriela Navarro, Luis’ oldest daughter.
Aria was born with Diamond Blackfan Anemia (DBA), a rare blood disorder that - in addition to severe anemia - is associated with birth defects and/or other abnormal features.
When Aria was delivered seven weeks early via an emergency cesarean section, she only weighed 3 lbs. 3 oz. At two months old, Aria received her first blood transfusion because she was unable to produce her own healthy red blood cells. Over the next six months, she received several more transfusions as doctors struggled to identify the cause of her anemia. Finally, they were able to diagnose Aria with DBA.
Since her initial treatment, Aria’s visits to the hospital have reduced significantly and she continues to grow and thrive. Because of her rare blood disease, Aria has received many units of blood from generous donors that sustained her health; these units also provided doctors with the tools to diagnose her condition.
“I am so thankful for blood donors because without them Aria wouldn’t have been diagnosed and most likely wouldn’t have survived!” her mother said.
As a child, Timena was a sporty and energetic soccer devotee. But by age 12, persistent shortness of breath forced her to give up the sport she loves. By age 17, her concerned family took her to a doctor, as she was losing a lot of weight and frequently seemed feverish. The doctor delivered surprising news: Timena likely had rheumatic fever when she was younger.
In Timena’s case, the infection was mild enough to slip under the radar, but it most likely damaged her heart. Her doctors detected a heart murmur and further tests revealed she was in grave danger: one of her heart valves was leaking.
Doctors acted immediately and Timena underwent two heart valve surgeries at Lucile Packard Children’s Hospital Stanford, where she needed blood transfusions to get her through the surgery.
Timena is now truly on the path to recovery and is grateful for all of the care and support she received from hospital staff, friends and family. “It was tough but I’m really blessed,” she said. “I’m thankful and looking forward to my life ahead of me.”
Lexi was diagnosed with sickle cell anemia as an infant. It’s a life-threatening illness in which red blood cells become sickle-shaped instead of spherical. These cells can get stuck in small blood vessels, blocking blood flow and oxygen to other parts of the body. At age 5, a routine test came back as abnormal and doctors discovered that the blood vessels in Lexi’s brain were narrowing. In an attempt to stabilize the vessels and lessen her chance of stroke, she began receiving blood transfusions every 3-4 weeks.
Things were going well until 2011, when Lexi started having transient ischemic attacks, or mini strokes. After an MRI, she was diagnosed with moyamoya, a rare vascular disease that causes the arteries in the brain to narrow progressively until they eventually close. She would undergo an extracranial to intracranial bypass surgery on the left side of her brain to increase blood flow. She continues to receive red blood cell transfusions every six weeks.
“Blood donors have blessed me to be able to do so many of my hobbies, such as dance and gymnastics,” Lexi says. “I can’t thank blood donors enough for helping me achieve my goals.”
Faelan has hereditary spherocytosis, which causes his red blood cells to be fragile and spherical in shape, instead of the normal donut shape. His red blood cells live a shorter life, and the spleen becomes enlarged as it attacks the red blood cells. As a result, Faelan is anemic and becomes tired easily.
Many common viral infections, such as parvovirus, can dramatically lower his red blood cell production and lead to an aplastic crisis, when the bone marrow stops producing red blood cells — resulting in sudden, severe anemia. When this happens, Faelan becomes as limp as a rag doll, pale as a ghost, and hard to wake. Several times, Faelan has needed emergency transfusions that literally saved his life. His mother says that the bag of blood is like a battery, charging him right up! Faelan’s parents feel very blessed because they know it could be a lot worse and it’s very manageable — but it’s only manageable because caring strangers donated blood to give to children like Faelan.
Taylor, age 15, has a rare illness that required blood transfusions and a kidney transplant. Taylor’s mom, Lori, was her kidney donor but blood donors also played a vital role in her recovery. Taylor has a message to the blood donors who helped save her life. “Thank you! I lost a lot of blood.”
Lori is also grateful for the life-saving gift blood donors gave her daughter and encourages others to give as well. “A very small donation can mean the world to someone else in dire need.”
"It cannot be a coincidence that World Blood Donor Day is June 14. The same day my life was saved by donated blood. Amazing!"
On June 6, 2011, Melissa and her husband, Tim, and 3-year-old son, Flynn, welcomed twin boys, Keane and Hayes, into their family. Melissa's pregnancy and delivery had been normal. The twins were healthy and together weighed over 14 pounds which is considered big for twins. After a typical recovery period, Melissa went home to care for her family. "To me, my family was perfect and complete," she said.
However, eight days after the birth, Melissa began to hemorrhage at home while getting ready to take the twins to see their pediatrician. Melissa's mom drove her to Stanford Hospital. At her insistence, Tim took the twins to their appointment while Flynn played at the park with his nanny.
At Stanford, the bleeding was unstoppable. Melissa was rushed to the operating room. She woke up five hours later in agony and confused. "Turns out, things went from bad to worse to way worse in the operating room. My doctor performed an emergency surgery to save my life," said Melissa.
Melissa had lost two liters of blood. During the surgery, she was given four units of red blood cells and several units of additional blood products. The next day, her doctor ordered two more units of red blood cells at her bedside. It was transfused while she lay awake thinking about the people who had donated blood for her. "Because of blood donors, I am alive," she thought. "True, my doctor made life-saving decisions, but in the end what I needed to survive was blood. And thanks to complete strangers, my children have their mom."
The importance of blood donation wasn’t lost on Kristin. In fact, she had been a blood donor almost all of her adult life, when the tables were turned on her in 1994. Suddenly, Kristin wound up on the other side. During an emergency medical situation, she received six units of O-negative blood over the course of 24 hours. “That’s a lot of blood,” she said. “I’m so grateful that it was there for me.”
Forever appreciative of the unknown donors who made her transfusions possible, Kristin now donates regularly at Stanford Blood Center.
Stanford Blood Center donors helped support the successful surgery that separated conjoined twins, Angelica and Angelina Sabuco, at Lucile Packard Children's Hospital on Nov. 1, 2011. The surgery that took nearly 10 hours required the two-year-old girls to receive approximately 10 units of blood.
"We are so grateful to the medical team and selfless blood donors who made Angelica and Angelina's separation possible," said mother Ginady Sabuco. "Please give blood so that other patients have it available when they need it too."
For more information about Angelica and Angelina and the separation surgery, click here.
Angelina, Ginady, Vincent, Angelica and Fidel Sabuco
Shortly after her second birthday, Savanah began making frequent trips to her mother's room at night, complaining that her tummy ached. Her mother, Carine, wondered if the tummy aches weren't actually Savanah's attempt to gain a little extra attention. Carine did think it strange, however, that when Savanah said her tummy hurt, she was pointing or pulling on her chest and not her "tummy."
Savanah's complaints persisted and one night, Carine placed her hand on Savanah's torso and was surprised about how hot it was, even though Savannah did not have a fever.
Carine decided to bring Savanah in to her pediatrician for a checkup. The routine blood tests and examination revealed nothing. Despite the test results, Savanah's doctor was very concerned about Savanah's swollen and warm abdomen and ordered a CT scan. The scan clearly showed a mass in Savanah's tiny body. She was quickly admitted to a local hospital where a bone marrow and other tests revealed that Savanah suffered from neuroblastoma — a rare cancer that usually affects very young children.
Savanah's family was devastated by the news, and scrambled to bring her up to Lucile Packard Children's Hospital at Stanford from their home in Bakersfield. Since arriving in September 2006, the family has stayed at Ronald McDonald House (RMDH) while Savanah receives treatment. "The House has become our second home," remarks Carine. While at RMDH, Savanah has charmed many with her bright smile and cheerful personality. "Savanah's a very outgoing and talkative little girl. She's grown so much and has come so far," adds Carine.
Savanah's initial treatment consisted of several months of chemotherapy intended to shrink the 15 cm wide tumor growing inside her tiny body. To counteract the damaging effects of the intense chemotherapy, Savanah received many life-saving blood transfusions that bolstered her weak blood supply. "I'm so very grateful for the blood that helped Savanah. If there were no blood donors, I doubt Savanah would still be with us," says Carine.
Finally, in January 2007, chemotherapy had shrunk the tumor in Savanah's abdomen from 15 to 7 cm. Surgery was scheduled and a team of doctors operated for hours to remove the mass. Savanah's doctor is optimistic that the operation was successful. Despite the surgery, Savanah must still endure yet another difficult treatment. This March, Savanah will undergo a stem cell transplant at LPCH — a procedure that will require a lengthy hospital stay followed by a 100-day isolation period at RMDH. This treatment will almost certainly require additional transfusions of blood.
Two-year-old David McNally, a bright and energetic toddler, was diagnosed shortly before his first birthday with Wiskott-Aldrich syndrome (WAS), a rare disorder of the immune system. WAS results in abnormal functioning of the cells that fight off infections, and causes the body to produce defective platelets, leaving David susceptible to infections and bleeding.
At one-and-a-half-years, David suffered a severe brain hemmorhage resulting from a trampoline accident. Several platelet transfusions were required in order to stop the internal bleeding. "Simply put, donated platelets saved David's life," explains his mother, Aimee.
In an effort to repair his damaged immune system, David received a bone marrow transplant at Lucile Packard Children's Hospital in August 2006. As part of his treatment, David received numerous blood products while recovering from the procedure. His parents kept a constant vigil during the difficult 40 day stay in the hospital—a physically and emotionally exhausting labor of love.
Once well enough to leave the hosptial, David and his mother began their post-transplant 100 day stay at Ronald McDonald House. He and his mother shared a suite at the house's Immune Garden Wing—a specialized area designed to keep children receiving treatment for diseases that affect the immune system healthy while they recover.
In addition to providing a clean environment where David can regain his strength, Ronald McDonald House also offers David and his mom more "living room." David takes full advantage of the house's spacious indoor and outdoor play areas, and is happy to have other children to play with. Aimee especially enjoys being able to cook their own meals and connect with other families staying at the house. For Aimee, Ronald McDonald House has provided a much-needed supportive community that she is convinced contributes to David's recovery and her own sense of well-being. "Here at the house, we all have each other to rely upon and share our experiences with. This support is instrumental, especially given that most of us only see other members of our family on weekends."
According to his mother, David is doing just fine and acting more like a toddler everyday. The two look forward to returning home sometime in January 2007.
Meghan was completely dependent upon machines for her survival... She had a rare and life-threatening blood disease known as TTP/HUS (Thrombocytopenic Purpura or Hemolytic Uremic Syndrome). This meant she was bleeding internally. The disease destroyed her red blood cells, and shards of the cells ended up in her plasma, consequently clogging her kidneys. She needed daily plasma exchanges.
The plasma pheresis treatments she received took an average of an hour and a half a day, and she used an estimated 17 units of donated plasma each day she was in the hospital. She also endured rounds of chemotherapy and numerous blood transfusions. She received 987 units of blood products.
"Thanks to my family's tremendous love and support, my friends' constant encouragement, and the many anonymous donors whose blood saved my life, I was able to graduate from college with my class despite taking a semester off," Meghan said. Currently, she works full-time and is not hindered by any remaining effects of her illness.
"If 987 strangers had not donated blood, my story would be a different one. We are all so thankful that it was there for me."
Matt is a member of the U.S. Armed Services and is stationed in Okinawa, Japan. When his son, Damian, needed surgery they came to Lucile Packard Children’s Hospital. Matt and his wife, Meelee, stayed at the Ronald McDonald House while Damian had a Kasai operation, a surgical procedure that creates a drainage system for bile by connecting the intestine directly to the liver. It is used for an abnormality called biliary atresia in which some or all of the normal bile drainage system is absent. Weighing only seven pounds, Damian used two units of blood during the life-saving operation. “It was nice to know that the blood was there,” said Matt.
“Without blood transfusions, he would not have been able to pull through,” Meelee said. “It saved his life.”
You would never know by looking at Ashley that just a year prior she’d had a kidney transplant operation that saved her life. Ashley had been on dialysis for three years before the call came that a kidney was available. Type-O blood transfusions helped her get through the surgery and a one-hundred-day stay at the Ronald McDonald House kept her near Lucile Packard Children’s Hospital for treatment while she recovered. Ashley’s dad, Jay, is a regular blood donor, and is grateful to all those who have helped Ashley get healthy again.
At only 5-months-old, Lexie needed six units of blood during a nine-hour liver transplant operation that saved her life. Doctors at Lucile Packard Children's Hospital expect Lexie to grow up healthy and happy thanks, in part, to the blood donors that saved her life. "Both the family that donated an organ and the people who donated blood saved her life," explained her mother, Wendy.
Ron needed hundreds of units of blood to stay alive during his successful battle with leukemia at Stanford Hospital. In October 2000, Ron underwent a bone marrow transplant (BMT) and had to be hospitalized and kept in a quarantined room for two-months. Ron received many platelet transfusions. "I never knew it took so much blood to keep people alive in the BMT area. It's staggering to know I was there for 10 months getting blood products, sometimes daily."